San Diego Virtual Women’s Marcher

Hi There, For the 2nd year, I’ve been bummed b/c I couldn’t physically participate in the Women’s March and then I saw this reference to the virtual march where I could take part in a community effort to support our rights–whether women’s issues or issues I face with having a disability. The photo is me…

“You have to act as if it were possible to radically transform the world. And you have to do it all the time.” – Angela Davis

I’m participating in this march because I think we need radical change in our country, to prioritize taking care of each other. Because of my chronic migraines, I wasn’t able to participate in the march in person, but I love that we are here together for this online march. #womensmarch #nycwomensmarch (image: close-up of woman’s…

God damned tired, still fighting

The organizer in me wants to write something that is encouraging and not as angry and exasperated as I feel. I’ve written three different posts. None of them reads right, this one included. That’s what happens when you are writing under the influence of cognitive dissonance. Maybe it’s the PTSD making me feel extra vitriolic….

I march for heart patients and auto immune sufferers

I am late to the disability game. 8 years ago, I woke up one morning and found half of my hair on a pillow. My fathers mother died at 57 of MS and I was told in my 20s I carried the anti nuclear antibody but it did not start attacking my lungs, my muscles and…

Making invisibility visible.

My entire life, I’ve been told I wasn’t worth much, if anything at all. Even now, most of the people in my life choose to ignore me, or at least keep a “safe distance,” because they don’t understand why I’m so quiet, or avoidant, or tearful, or emotional, or angry, so they consider me toxic….